No surprise that the application of Temodar leads to the eventual recurrance of a tumor in a more aggressive state. It is rare if ever that all malignant cells respond to Temodar so makes sense that after all the responsive cells have died or stopped multiplying that the surviving malignant cells would thrive on an increased blood supply that doesn't have to be shared with the dead or dormant cells affected by Temodar. I've yet to find a single Temodar study that followed a patient through more than 2.5 years for this very reason IMHO. Meanwhile Shering-Ploug is reaping 1 billion per year profit off the sale of Temodar and soon to merge with Merck that may lead to even higher prices at patient expense.
Posted Date: 13 March 2009
I found a news article concerning temozolomide (TEMODOR) on the www.virtualtrials .com listed under brain tumor news 3/05/09,that anyone with a glioma brain tumor should check.It is the results of a study done at MEMORIAL SLOAN-KETTERING CANCER CENTER NEW YORK CITY by Dr.Eric Holland M.D PH.D the director of the center basically saying that TEMODAR boosts the agressiveness of surviving brain cancer cells making recurrance of the tumor more likely.I feel this is important for brain tumor patients to know(since my husband also has a glioma brain tumor)I would like to suggest that anyone currently on this drug or thinking about using it read the news article carefully and if you are concerned at all please have a talk with your doctor? In closing I would just like to say "DAVID,STILL MISS YOUR GUIDING LIGHT AND HELPFUL ADVICE AND ALWAYS WILL"
Posted Date: 12 March 2009
I hope that David's family reads this, as I have just found out that he is no longer with us.
I am not a victim of his affliction, nor is anyone of my family....but I learned of David's case a few months ago while browsing articles on Drum Corps planet (DEFINITELY a drum corps nut myself)and became most moved by his case.
Today I was browsing the Holy Name website, and on a whim browed the "Departed" page and discovered that he has passed on.
I admit I did not read up a whole lot about him but he was a very strong young man who was taken early, and his story, for whatever reason, touched me greatly. I was not prepared to learn today that he has passed on, but may he find peace in God's loving embrace.
I wish David's family the strength to move forward celebrating his life more than mourning his loss. Words hardly have the strength to comfort, but it's what I have to give.
God bless you all,
Richard G. Skare
SCV 88
Blue Devils 89-90
Posted Date: 11 March 2009
My prayers are with Susan Miller for the loss of her beloved son David. My thanks also for her assistance in helping a friend of my son (Brian) who has a brain tumor and had lost all hope until he talked with Susie.
Best wishes for Brain who will see the doctor March 11 for the first time and many thanks to Susan Miller for helping to make this all possible.
Sincerely, Laurette Coward Adams
Posted Date: 10 March 2009
As The Cadets approach this, our 75th Anniversary Diamond Jubilee season, our hearts are burdened by the loss of a fellow Cadet we all revered and loved; our special Cadet of Cadets, David Welch. He will no longer be with us in the middle of the Cadet circle singing The Holy Name Hymn, or at the entrance to the ramp leading to the stadium turf to offer words of encouragement, or in the stands cheering the performances of our 2009 Holy Name Cadets. But, he will be there...in each and every Cadet heart as we gather to celebrate our history and heritage, and to remember that our bond one to another never ends. David's earthly journey has come to an end, but the gift of courage and dedication and example he left for all of us will live on. For Holy Name shall always be...
Thank you David.
Posted Date: 9 March 2009
Thank you for providing this site. It is a great resource for all those touched by brain cancer!
I am currently undergoing treatment for recurrence of brain cancer, and I discovered that while there is a great amount of technical and research information on the topic, no good books have been written about the human side of the equation. My initial treatment six years ago was in a Phase one study of terminally ill people, with a 100% mortality expected.
Thanks to a new drug Temodar, the survival rate for my particular cancer (first occurrence) jumped to 50-100%.Having been blessed by this, I decided that Gad had left me on earth for greater purposes than I knew. The recurrence inspired me to actively help other brain cancer patients through my writing and speaking skills. I plan to speak with brain cancer groups, and write articles and a book that can involve the human factor. I want to tell the stories, and provide hope and vision that our modern age of medical miracles is providing.
I am quickly understanding how difficult his will be, both for others touched by brain cancer and for me personally.
I am all too aware of the long odds against most brain cancer patients, and in my own case, I am in uncharted waters once again. Nevertheless, I am determined to put cancer in its place--it has the ability to kill us, but it has no right to defeat us.
Whatever information, stories, emotions, or questions you and others wish to share would be welcome. I don't know where this will all go, but I believe with all my heart that we can affect many lives for the better with this project.
Thank you
Tom
Posted Date: 7 March 2009
Boy, I miss your laughter.
Posted Date: 5 March 2009
Dear family of David,
First of all, my sympathy to your family over the loss of such an amazing person. I met David many years ago while working at Accenture. We met while attending a conference/training in Singapore and although we were only together for a week, we kept in touch with each other for many years. He was an inspiration for me as he always had such a positive attitude and simply enjoyed people and staying connected. I have to admit that I have been very bad about checking on David's health over the last year as I have twin toddlers that have kept me extremely busy. For some reason, I had an urge to look up David today and was saddened by the news. Since learning of his death, I have been reviewing his journals and praying that David is now at peace. I am still in shock but also in utter amazement that he could have such a profound impact on so many people around the world. It certainly humbles me and at the same time, reminds me of the importance of friendship and family. God bless you, and may the memories of David keep his spirit with us all. RaeAnn Hancock
Posted Date: 1 March 2009
I worked with David for video delivery over the internet. I spoke to him multiple times as we came up with what he wanted in his video player. He is an amazing person that showed great courage and passion. I will truly miss the conversations we had as we never ever stayed on topic. We would always venture off in some new direction. I guess that is how I think of it; he is just venturing off in a new direction without the rest of us.
Just remember to send us some bread crumbs David.
My deepest sympathy for the family,
JR
Posted Date: 23 February 2009
I miss you, David. :-(
Posted Date: 20 February 2009
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